UP-19 Qualitative and Quantitative Evaluation of a Prostate Cancer-Patient Empowerment Program
Thursday June 27, 2019 from
TBD
Presenter

Gabriela Ilie, Canada

Soillse Scientist in Prostate Cancer Quality of Life Research

Urology

Dalhousie University

Abstract

Qualitative and quantitative evaluation of a prostate cancer-patient empowerment program

Gabriela Ilie1,2,3, Robert Rutledge2, Ross Mason1, Ricardo Rendon1, Greg Bailley1, David Bell1, David Bowes2, Nikhilesh Patil2, Derik Wilke2, Cody MacDonald3.

1Urology, Dalhousie University, Halifax, NS, Canada; 2Radiation Oncology, Dalhousie University, Halifax, NS, Canada; 3Community Health and Epidemiology, Dalhousie University, Halifax, NS, Canada

Dalhousie Research Medical Foundation.

Introduction: While prostate cancer patients have some of the longest survivorship rates among all forms of cancer, literature in recent years has pointed out to an increased crisis among these survivors who are battling mental health issues long after their treatments have been completed, especially depression.  Yet little is being done to address the mental health issues that are co-occurring with the prostate cancer diagnosis or survivorship. Here we report a qualitative assessment resulting from three focus group interviews following a 28-days Prostate Cancer Patient Empowerment Program (PC-PEP) pilot study delivered to 30 men in Halifax, Canada.

Methods: Thirty patients and survivors of prostate cancer in Halifax, Canada (Mean age=68.93) participated in a 28-days PC-PEP intervention. Patients demographics listed in Table 1. Paper administered questionnaires assessed participants’ interest in the program, specific aspects of the program and its education/training, competence of the team delivering the program, perceived importance/usefulness of PC-PEP for participants, importance/uselfulness of the program if it were to be administered to patients from day one of diagnosis, and likelihood to recommend the program to other men diagnosed with prostate cancer at pre- and post- intervention.

Results: The program received high endorsement from the patients and was reported to have been extremely useful for the participating men. Participants reported unmet needs including emotional vulnerability; difficulty to communicate emotions and relate to other people; perceived lack of agency over health care; emotional fragility; and reticence to talk about PCa issues.

Conclusions: Integration of patient education and empowerment programs in patient and survivorship care are warranted. Such programs have the potential to provide better quality of life and support patients during survivorship.


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